유튜버 사바나 브라운의 자폐증 진단: 자기 발견과 수용의 여정

### 사바나 브라운의 자폐증 진단: 자기 발견의 여정
* 🗣 26살의 사바나 브라운은 자폐증 진단을 받았는데, 처음에는 결과에 대한 확신이 없던 그녀에게 큰 충격을 주었습니다.
* 🤔 이 진단을 통해 그녀는 어린 시절부터 심각한 고통을 안겨준 자폐적 특성으로 인한 평생의 어려움을 극복하고 앞으로 나아갈 수 있는 길을 열었습니다.
* 📝 어린 시절의 사회적 차이를 강조하는 아버지의 진술서를 포함한 상세한 자기 평가는 진단 과정에서 매우 중요한 역할을 했습니다.
* 👧 사바나의 어린 시절은 사회적 어려움, 감각적 민감성, 정서적 격렬함, 또래와 근본적으로 다르다는 느낌으로 점철되어 있었습니다.  그녀는 어린 시절 자신에 대한 아버지의 설명을 인용합니다:  "아주 어렸을 때 사바나는 다른 사람과의 불필요한 상호작용에 관심이 없었습니다."
* 💔 중학교 시절에는 사회적 어려움이 더욱 심해져 고립감과 불안감, 자폐적 특성으로 인해 근본적으로 '나쁘다'는 느낌을 갖게 되었습니다.
* 💪 사바나는 자폐증을 감추기 위해 개발한 대처 메커니즘을 설명하며, 사회적으로 용인될 수 있는 성격으로 꾸미는 것을 포함해서요.  이로 인해 피곤함을 느끼고 심지어 살아 있고 싶지 않다는 생각까지 하게 되었습니다.
* ✨ 이 진단은 온라인 그루밍과 섭식 장애와 같은 과거의 어려움과 경험에 대한 설명을 제공하면서 엄청난 안도감과 자기 수용감을 가져다주었습니다.
* ❤ 사바나는 이제 자기 연민, 감각 조절 도구 활용, 자폐성 정체성 수용에 집중하며 자신의 성격의 긍정적인 측면을 강조하고 온라인 커뮤니티를 찾고 있습니다.

사바나의 자폐증 진단은 평생의 사회적 투쟁과 스스로 인식한 이상한 점을 설명하면서 종결되었습니다.

[singing] [May the dear Lord bless you] [Have fun, okay. Go ahead. Go ahead.]

It was just autism. [music: k.k. lament] I'm sure you're all very surprised. Hello! My

name is Savannah and it's nice to see you again with this new information I've acquired on my travels. In a video I made last year I said I suspected I had a hint of autism

– oh ho, more than a hint! Detective! It's the whole damned case! When I was there saying

that I didn't really have any intention of going through the formal diagnostic process, I was content just thinking that was probably true, but as we all know, the truth begs to

be officiated in a clinical setting. I was diagnosed in May at age 26. And even though

I went into the diagnosis pretty confident about what the result would be and considered it a formality more than anything, I found myself really emotionally rocked by the certainty.

The whole experience affected me a lot more than I thought it would. I felt first very sad

but then I felt an incredible sense of closure and a moving on with my life from a pain that has affected me profoundly since I was very young. [boioioing noise] Thought I turned

that f***ing thing off. [studio laughter] The sense that has pervaded every aspect of my life up to now is that I am not like other

people. As a young child, a lot of my problems seemed to be a matter of sensitivity. And so

begins the very honest 3000-word essay I sent to the doctors tasked with deciding what –

what was going on. As part of the diagnostic process, I was told to write a four-page minimum

effectively life and times of Savannah Brown, which needed to include a statement from my parents, in which my dad wrote: "As a very young child, Savannah wasn't interested in unnecessary

interaction with others. She would always be the first to grow tired of playtime and head off to do something on her own. Adults often tried to make her smile or laugh in ways that

would typically work on other children, but Savannah wasn't amused. "Damn right I wasn't."

Folks, I was quirky. Cried easily and often about everything. Very emotional. Very clumsy,

embarrassed easily, severe food pickiness, went to the school nurse, like, once a week, begged

to be taken away from every sleepover I ever attended, and I loved dinosaurs and bugs.

This is my behavior chart from the year 2000, which features classics such as "share without

complaining" and "no growling." When I list these traits in this context, it's so clear that

that's what it was. But at the time, and quite literally up until now, all of these things

about me were mysterious. Why is this girl so odd? they all wondered. And I could sense

it, that my family and peers thought that of me – and for the record, I agreed. That sense

of social rejection became especially apparent in middle school; I really struggled socially. I felt like I could never say

the right words to endear myself to people.

My days were a life-or-death swivel between debilitating nervousness and complete confusion. I had no idea what was going on. A few occasions

made it clear to me that I just had no idea

about the social reality that existed around me at all – once I was having what I thought was a friendly, jokey conversation with

a girl in my class, and she concluded the conversation

by pushing me out of her chair. Oh my God, stop

bullying me. I very clearly remember approaching

able to sense that something was wrong. Like

there was a bristling. I eventually figured out I was making my peers uncomfortable. I

was making them uncomfortable with my personality.
This is – I'm surprised by how embarrassing this still is to recount. It was a tough
time. I don't think it's an overexaggeration

to say I found school traumatizing. My
parents, bless them, did not know. I was

a straight-A student who never got in trouble
for anything, so there was no indication anything was wrong. They also didn't know I was
autistic, obviously. They knew I was a little

quirky, but there wouldn't have even been
an inkling that that's what it was; the information

wasn't available; it's not their fault. Unfortunately,
at home the autistic traits were treated as

bad behavior – which, in conjunction with the
social rejection I felt, made it clear to me that I was bad, and these impulses, which only I seemed
to have, were bad, and I would have to fight

against them if I ever wanted to be good. Throw
in the Catholicism, and oh my God! That's a

very interesting person! I decided I could
become good and likable and desirable with the power of intent. I basically curated personality
traits, things that I found attractive

or endearing in other people and then pasted
them on top of myself. I knew this had to be

done. There was no other option. I also
knew that because my real self was, for some

reason, unsuitable for consumption, that I was
alone in this life. Geez. It was just me and this

difference, for which I had no name. That's
pretty heavy for a child. I am making this

funny; it's also sad, and I want to be explicit
about what this does to young people; 

I thought about not being alive anymore
a lot. Not killing myself, but not being alive. But it wasn't because of depression
or anxiety, which I did eventually get diagnosed

with at age 16. This is a common thing:
undiagnosed autistic young people are sometimes incorrectly diagnosed with depression
or anxiety because many of them are not

Doing well. I wanted to die because I was exhausted.
I was *exhausted*. I would go to school and act

in my personal eight-hour-long play and be
exhausted, and then I'd come home to my family

and act in a second, angrier eight-hour-long
play and be exhausted. And even in the moments

I did get alone, which I cherished more
than anything, I was sitting in those moments with the awareness, the absolute truth
that I decided there was something very, very

wrong with me. This was not ideal! Up until
recently, I found all of these things too fucked

up to even mention, but sometimes one finds
that one's darkest secrets are actually just common, well-documented symptoms. The diagnosis
has brought me a great deal of relief in

how explicable it's made these mysteries of
my past. I have felt profoundly, for decades, that I do not make sense, and to
discover that I, in fact, make perfect sense

has been so liberating, it breaks my heart.
Even things that happened to me that I considered like weird flukes: I was groomed online
when I was 15, which is something that's known

to happen to girls with autism. I had an eating
disorder, something else that's common in

undiagnosed autism. The relief exists alongside
the mourning of an imaginary childhood where I could have had an explanation and support
but did not. Of course, one wonders what

could have been different and what pains one
did not have to feel. But also, I've seen accounts

from people who did get diagnosed as children
and they have stories about getting funneled through the most nightmarish special
education programs you could ever imagine—it's like

there's no solution that leaves people unscathed.
Anyway, now I'm very independent, I'm very adaptable

when I need to be. The fact I can mask so well
is massively helpful in some situations, like,

it is happening now. I can come across well,
I can tolerate a lot of mental distress. Eventually

Things got better. Unsurprisingly, a lot of the social turmoil went away once I didn't

have to go to school anymore. I really found a home on the internet. Bit of a godsend.

I was just thinking about this: if I were alive in a time where I was not able to do

this, or, like, type in all lowercase as if my thoughts were getting beamed directly out

of my head, then I think I think it would have been bad. I think I would have had a bad time.

I'm just... I'm really grateful that we're all here and we've all found each other here.

Four years ago I made a video called "Forming real human connection? Sounds fake, but OK." It was about a loneliness I had been feeling

at the time. It was right after my 23rd birthday.

In hindsight, it is an unintentionally textbook listing of symptoms, which a lot of you were privy to; your degrees are in the mail.

But also what I realize now is that the main

thesis of the video kind of isn't true. I talk a lot about my perceived inability to form substantial, meaningful relationships

with people, but when I made that video I was

in a long-term relationship. I'd been in long-term relationships before that. I think what was

happening in my analysis of my own life was – I had a lot of big ideas about what

I thought it meant to be a normal person. To me, being normal meant having this, like, sprawling

friend group and being close to all these people, and if that's not what my life looks like, it means I'm... I'm doing something incorrectly

or I'm not trying hard enough. There's some

kind of deficiency in me that can be fixed with mental effort, and once it's fixed I can join them. This conceit is something that

keeps cropping up post-diagnosis. So much

of what I wanted for my life was structured to match what I thought a life was supposed to look like, rather than what I actually wanted

The difference between what you think you want and what you actually want is so much straining and shame and unhappiness.

At the moment, I do well to have one person. I can form that kind of intimacy I'm after

with just one person. I don't know if that'll change, but for now—I'm still figuring

a lot of stuff out. Other ongoing things: I experience meltdowns. They're triggered in

me most often by high-intensity emotional social situations. I actually feel like I'm retreating into my head, just like, horrible psychic pain... having any level of productive

conversation once the meltdown is happening is totally futile. It's awful. It's grim. It's like I'm possessed by mud. The diagnosis

has been especially helpful in letting me

accept that this just, like, happens to me, I guess? I've found my being "an adult who

throws tantrums" so humiliating, but recognizing this as an actual phenomenon that happens because of my autism and not just

been helpful in finding solutions, but also just being nicer to myself. Okay, this is a lot, but I'd be remiss if

I didn't mention it. If you're related to me,

you mustn't watch this next part. I've been exploring and have discovered that there seems

to be a higher incidence rate of autism among people who have fetishes. There's some research

about it, not a ton, but to me it makes sense: both sort of operate in hyper-fixation, sensory

i'm not an alien i'm just autistic :)

Savannah Brown

26세에 자폐 진단을 받은 사바나 브라운.

그녀는 진단 과정과 확진에 대한 자신의 감정적 반응을 설명합니다.

처음의 슬픔은 과거의 아픔을 딛고 일어선다는 종결감으로 이어집니다.

그녀는 평생 남들과 다르다는 느낌을 받아왔다고 회상합니다.

진단 과정의 일환으로 어린 시절의 경험을 설명하는 상세한 에세이를 작성했습니다.

어린 시절의 경험과 사회적 어려움

그녀의 어린 시절에 대한 아버지의 이야기는 그녀의 사회적 상호작용에 대한 무관심과 비정상적인 반응을 강조합니다.

사바나는 어린 시절의 기질, 정서적 민감성, 서투름, 사회적 불안에 대해 설명합니다.

2000년에 작성된 행동 차트가 언급되어 있으며, 일반적인 자폐증 특성을 보여줍니다.

그녀는 중학교 시절 사회적 상호작용과 의사소통에 어려움을 겪었다고 이야기합니다.

그녀는 사회적 어려움과 부모의 이해 부족으로 인해 학교생활에 큰 충격을 받았다고 말합니다.

사바나는 사회적 거부감을 피하고 적응하기 위해 선별된 성격을 만드는 것을 설명합니다.

그녀는 우울증이나 불안이 아니라 마스크로 인한 피로감으로 인해 살아있지 않다는 생각에 대해 이야기합니다.

진단을 통해 안도감과 함께 과거 경험에 대한 설명도 얻을 수 있었습니다.

그녀는 온라인 그루밍과 섭식 장애와 같은 과거의 경험을 진단되지 않은 자폐증과 연결합니다.

그녀는 어린 나이에 자폐 진단을 받은 사람들이 겪는 어려움을 잘 알고 있습니다.

그녀는 학교를 떠나 온라인 커뮤니티를 찾는 것이 미치는 긍정적인 영향에 대해 이야기합니다.

사바나는 외로움을 자폐증의 증상으로 인식하면서 외로움에 대한 이전 동영상을 떠올립니다.

그녀는 정상적인 삶과 사회적 관계를 구성하는 것이 무엇인지에 대한 과거의 오해를 분석합니다.

그녀는 격렬한 사회적 상황으로 인한 우울증을 경험했다고 설명합니다.

그녀는 자폐증과 페티시 사이의 상관관계에 대해 언급합니다.

삶의 긍정적인 측면과 자기 수용성

사바나는 그녀의 행복, 호기심, 강한 목표 의식을 강조합니다.

그녀는 혼자 사는 것이 편안하고 소박한 즐거움을 즐긴다고 말합니다.

그녀는 격렬한 감정 반응과 감각적 민감성을 경험했다고 설명합니다.

반복적인 행동과 관련된 수치심을 극복하고 이를 자기 조절 도구로 활용하는 방법에 대해 설명합니다.

그녀는 진단을 통해 실패와 자기 비판에 대한 자신의 관점이 어떻게 바뀌었는지 설명합니다.

두려움, 마스킹 및 향후 전망 해결

사바나는 자신의 진단을 공개했을 때 다른 사람들의 부정적인 반응에 대한 두려움에 대해 이야기합니다.

마스킹에 대한 주제와 그 유용성에 대해 설명합니다.

그녀는 자기 발견과 수용이라는 지속적인 학습 과정에 대해 성찰합니다.

그녀는 자신의 진단이 다른 사람들과의 관계에 미치는 긍정적인 영향을 강조합니다.

그녀는 다른 사람들이 비슷한 진단을 받는 것을 보고 느낀 감정을 공유하고 비슷한 경험을 한 사람들에 대한 공감을 표현합니다.